Myotonic Dystrophy: The Facts
Peter Harper
Price: £18.00 (paper)
ISBN-13: 978-0-19-852586-8
Publication date: 27 June 2002
128 pages, 10 line illus., 196x129 mm
A sample of this book is available in PDF format
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Ordering |
Individual customers may:
order by phone, post, or fax.
Manufactured on Demand - stock will be supplied on a firm sale basis within 28 days
Teachers in UK and European schools (and FE colleges in
the UK):
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| Reviews |
| - 'You couldn't ask for a better book about this complex disease . . . For anyone with this disease in the family, it's a must read at a bargain price.' - Quest: The Journal of the Muscular Dystrophy Association, Vol 9, No 5
- '. . . the first book to be published for lay people who have the condition. It is written clearly for people with no medical expertise.' - Yours
- 'This book is a gem that patients with this condition will want to read and own.' - Doody's Journal
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| Description | | - The first ever popular book on the commonest inherited muscular dystrophy
- Written clearly and simply for those with no medical expertise
- Provides essential information on genetic testing, and how to make the difficult decisions.
- Gives those caring for sufferers the hope and support they need
- Includes list of relevant organisations and websites
| Myotonic dystrophy is part of the group of muscular dystrophies. It is the commonest inherited muscular dystrophy and has a profound effect on individuals who are diagnosed with the disease and their families. It is present for many decades of a patient's life and has many attendant implications. Unlike the other dystrophies, it also affects other organs in the body, making this a very
distinctive disorder, and a very troubling one for those close to it.
This is the first book to be written for sufferers of this disorder. Written by the world authority on Myotonic dystrophy, Peter Harper, the book covers a wide range of aspects of the disease, explaining in simple terms exactly what the condition is, what the symptoms are and how they can or might develop. Self education
is encouraged and this book gives anyone interested the tools with which to find out more and empower themselves by taking an active role in their own treatment. Most importantly it carries the message that there is hope, something can be done, even if there is, as yet, no actual cure. Anyone affected by this disorder will find this book a great source of hope and strength.
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| Contents |
Preface
1.
What is myotonic dystrophy
2.
Muscle symptoms and myotonic dystrophy
3.
Looking ahead
4.
Not just a muscle disease
5.
Children with myotonic dystrophy
6.
Family aspects and genetic risks
7.
Advances in research
8.
Support and information
9.
Management and treatment now
10.
Future hopes and plans for therapy
Further reading and information
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| Authors, editors,
and contributors |
Peter Harper, University of Wales, College of Medicine
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The specification in this catalogue, including without
limitation price, format, extent, number of illustrations,
and month of publication, was as accurate as
possible at the time the catalogue was compiled.
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Jacket images are provisional and liable to change before publication.
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